*Seattle, WA area- early learning & counseling

Support group, webinars, and information center specifically for families affected by pediatric liver disease, including BA American Liver Foundation.

Volunteer-operated nonprofit supporting emotional, educational, and financial needs of families dealing with pediatric liver conditions, including BA (especially around transplantation).

COTA can help remove the financial barriers to a life-saving transplant by providing fundraising assistance and family support. We work with families whose children and young adults are on a transplant journey.

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes

Great resource to see how the new born screening for BA is in Ontario.

*Seattle, WA area- local events & family resources

Medical care regardless of ability to pay; financial assistance programs (Charity Care and Shrine Assistance) may cover medical costs, but assistance for non-medical expenses like lodging or transport varies by location Shriners Children's+1.

*Seattle, WA area- Food, housing, legal aid.

Coalition of stakeholders including families, advocacy groups, and health professionals aiming to elevate rare disease needs in state policy. A helpful touchpoint for referrals to programs or legislative advocacy on your behalf.