Partner with BARE to expand in ways the biliary atresia community has never seen before - especially within the U.S.
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Public health, medical research, and rare disease programs are facing unprecedented funding challenges. Recent and proposed federal cuts have created significant gaps in research, education, and community-based support—gaps that disproportionately affect rare disease communities like biliary atresia.
At Biliary Atresia Research & Education (BARE), we believe progress does not pause during uncertainty. Instead, it is propelled by committed partners who recognize the urgency—and the opportunity— to lead.
Private partnerships now play a critical role in advancing innovation, improving care, and ensuring families are not left behind.
Why Partner With BARE
BARE is dedicated to improving outcomes for individuals and families affected by biliary atresia across the lifespan. Strategic funding allows us to move faster, think bigger, and build programs that would not be possible through traditional funding streams alone.
Partnership with BARE means:
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Direct investment in a rare disease with significant unmet needs
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Transparent, mission-driven use of funds
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Opportunities to support programs with measurable, lasting impact
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Helping shape initiatives that advance care, education, and advocacy nationwide
This is not just support—it is leadership.
2026 Funding Priorities
BARE’s programs are designed to support individuals and families affected by biliary atresia across the full continuum—from early detection through lifelong care, community connection, and research advancement. We are seeking funding partners to help advance the following core program areas:
Caregiver & Patient Support Program
This program addresses the emotional, mental health, & practical support needs of caregivers & individuals living with biliary atresia. Through peer-based support, education, and community engagement, we help families navigate diagnosis, treatment, transplantation, and long-term outcomes—needs that are often overlooked in traditional healthcare systems.
See Program Details & Funding Requests
Newborn Screening & Early Detection
Early detection is critical to improving outcomes in biliary atresia. BARE supports initiatives focused on newborn screening, early diagnosis education, and awareness among healthcare providers and families to reduce delays in identification and intervention.
See Program Details & Funding Requests
BARE On The Road: BA Day
BARE On The Road brings education, connection, and advocacy directly to communities. Through BA Day events, we convene patients, caregivers, clinicians, and researchers to share knowledge, elevate lived experience, and strengthen local and national networks.
See Program Details & Funding Requests
2026 Biliary Atresia Webinar Series
Our webinar series expands access to expert-led education for patients, caregivers, and providers nationwide. These virtual programs address clinical care, mental health, nutrition, transition to adult care, and emerging research—ensuring knowledge is accessible regardless of geography.
See Program Details & Funding Requests
Ongoing & Foundational Initiatives
In addition to our programmatic priorities, BARE continues to invest in initiatives that strengthen the biliary atresia ecosystem as a whole:
BARE Connection Network (BCN)
The first biliary atresia patient-led registry, advancing research, data-driven insights, and patient-centered outcomes
Conferences & Convenings
Supporting collaboration among researchers, clinicians, patients, and caregivers
Research Grants
Funding studies that address critical gaps in biliary atresia knowledge and care
Education & Awareness
Developing trusted resources for families and healthcare professionals
These initiatives form the backbone of BARE’s mission and ensure sustainable progress for the community.
SEE FOUNDATIONAL DETAILS & FUNDING REQUESTS
Make History With Us
We invite individuals, families, businesses, and philanthropic partners to join us as catalysts for change. Funding partners have the opportunity to align with specific programs that reflect their values and vision for impact.
Together, we can ensure that progress in biliary atresia research, education, and support does not slow—but accelerates.
To learn more about partnership opportunities, detailed program execution & reporting or to discuss aligning your support with a specific initiative, please contact us at:
