Let's make a rare disease feel a little less isolating.
The BARE Connection Network (BCN) is a dedicated community space built for families & patients affected by biliary atresia to connect, share, and support one another. Shaped by your feedback, the BCN brings together real experiences, trusted insights, and meaningful relationships in one place.
We’re excited to introduce our new BCN Community, powered by Circle—designed to make connecting easier, more engaging, and more accessible than ever.
This members-only space offers a safe, private environment where you can ask questions, find resources, and build lasting connections with others who understand your journey.
Explore how to join and start connecting below.
The BCN is powered by Circle, a private, members-only community platform designed to help you connect, share, and find support—all in one place.
Inside the BCN, you can connect directly with other patients and families and easily find people with similar experiences by filtering member profiles—whether that’s Kasai-only, pre- or post-transplant, living or deceased donor, specific complications, or other shared diagnoses. This makes it easier to find the right voices, perspectives, and support when you need it most.
Your experience is fully in your hands. You control your profile, your information, and how you engage with the community.
The platform also includes:
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A central discussion space for all BCN members
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Connect with other BA patients or caregivers/families from around the globe
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Private groups for Caregiver Support Group cohorts
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Adult Patient Private Group
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A shared events calendar to stay up to date on BARE programs & events
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The ability to ask questions, share local events and exchange resources with others in the community
This is more than a forum—it’s a space built to help families feel informed, supported, and empowered, with meaningful connections and resources always within reach.