BARE On The Road
Whether you're newly navigating a BA diagnosis or years into the journey, the BARE On The Road Program offers an empowering half-day event designed specifically for each institutions stakeholders (families, patients, caregivers & medical teams) impacted by biliary atresia.
Hear from medical experts, connect with others who share your experience, and explore breakout sessions tailored to every stage of the BA journey—from transition to adult care to life post-transplant. You'll also have a chance to ask your most pressing questions during multidisciplinary Q&A panel and take home resources to help guide your journey.
Accessibility
Visiting individual centers enhances the accessibility of BARE programs, resources, knowledge and efforts for both the medical and family communities. Through facilitated discussions, BARE aims to gain a deeper understanding of how to support and foster innovation within the biliary atresia disease state.
Education
From expert-led talks on diagnosis, treatment, and transplant care to breakout sessions on mental health, transition planning, and real-world patient experiences, attendees will gain practical knowledge and tools for every stage of the journey.
A dedicated multidisciplinary Q&A panel will provide answers from top specialists in hepatology, surgery, psychology, and more—ensuring every voice is heard and supported.
Whether you're seeking clinical insights or everyday coping strategies, our educational programming is designed to empower patients and families affected by biliary atresia.
Shared Experiences
One of the most impactful parts of the BARE On The Road Program is the opportunity to connect & hear directly from those who truly understand life with biliary atresia.
These real-life stories offer more than insight—they provide validation, connection, and hope.
By attending BARE On The Road, families gain more than information—they become part of a growing community that listens, learns, and lifts each other up. It's a space where no one has to feel alone.
Innovation
We believe that true innovation happens when patients, families, clinicians, and advocates come together. This program brings all stakeholders into one space—each with unique perspectives and lived experiences that drive progress in the care and understanding of biliary atresia.
From the latest medical advancements shared by leading hepatologists and surgeons to firsthand insights from families and transplant recipients, the program fosters open dialogue, collective problem-solving, and a deeper understanding of what matters most.
By bridging clinical expertise with real-world experiences, BARE On The Road becomes more than an educational event—it becomes a catalyst for new ideas, better care models, and empowered communities.
