Join us on January 23, 2027, at the Omni Tucson National for an inspiring half-day event that brings together not only the Tucson community, but also families, advocates, and leaders from across the biliary atresia community nationwide.
This exciting day on the course is more than just a golf tournament—it is an opportunity to connect, learn, and make a meaningful impact. Participants will enjoy a fun and engaging golf experience while gaining a deeper understanding of the challenges faced by families affected by biliary atresia. Attendees will also hear about the latest advancements and innovations from the physicians and researchers leading progress in this space.
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Most importantly, this event is about changing lives.
Every swing, every conversation, and every contribution helps drive forward critical research, support families navigating this journey, and bring hope to those affected by biliary atresia.
We invite you to be part of something truly special—an event where community, purpose, and impact come together.
All proceeds and donations from the event directly support BARE Inc., a 501(c)(3) nonprofit organization.
Meet BARE
Co-Founder & President
Jordan Sarbaugh brings over a decade of leadership experience in operations and compliance. Inspired by her son’s biliary atresia diagnosis and liver transplant, she became a dedicated advocate and co-founded BARE Inc. in 2022. She lives in Denver, Colorado with her family.
Tournament Co-Chair - Wesley Harrison
With a background in construction project management and a lifelong love of golf, Wesley serves as Tournament Co-Chair for BARE Inc., helping to bring the organization’s annual tournament to life. As a dad whose family has been personally affected by biliary atresia, he is committed to supporting families and raising awareness through meaningful community events.
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Co-Founder & Executive Director
Jen Lau holds a Master of Public Health and brings over 20 years of experience in business management and human resources. Inspired by her son’s biliary atresia diagnosis and liver transplant, she became an advocate and co-founded BARE Inc. in 2022. She lives in the Chicago area with her family.
Tournament Co-Chair - Laura Lee
Laura serves as Tournament Co-Chair for BARE Inc., where she blends over 20 years of experience in pediatric healthcare, caring for children with complex medical diagnoses, and a deep passion for patient education and advocacy. As a mother to a child affected by biliary atresia, she is dedicated to building community and creating impactful events that support families on similar journeys.
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The BARE Community
BARE is powered by a growing, nationwide community dedicated to advancing care and connection for those impacted by biliary atresia. Our network includes 6 Board of Directors, 11 Medical Advisory Council members representing 8 leading pediatric centers across the United States, more than 15 multidisciplinary specialists, and over 23 strategic partners.
At the heart of BARE is our BARE Connection Network (BCN), a community of more than 270 patients and families. This collective experience ensures that every initiative we lead is grounded in data and shaped by the real needs of those we serve.
By the end of 2026, BARE will have hosted community events at an estimated 12 centers nationwide—expanding access to education, connection, and meaningful dialogue so families can not only survive, but thrive.
During this event, participants will have the opportunity to connect directly with members of the biliary atresia community—including patients, families, and caregivers—to better understand the impact this disease has on individuals and communities alike.
Why Sponsor This Event?
By sponsoring this event, your organization or business becomes part of a mission driving meaningful change in a rare disease space that has long been underfunded and overlooked.
Biliary atresia is the leading cause of pediatric liver transplantation, yet it receives only a fraction of the attention and research funding needed to improve outcomes. Your support helps close that gap—funding critical research, advancing early detection, and supporting families navigating this life-threatening disease.
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Drive change & receive tax benefits as all donations & sponsorships are tax deductible
Sponsorship Highlights:
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Support critical funding in a rare disease community that is often overlooked
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Align your brand with a meaningful, mission-driven cause
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Gain visibility among community leaders, healthcare professionals, and advocates nationwide
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Demonstrate corporate social responsibility and community impact
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Engage directly with patients, families, and caregivers
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Be part of advancing research, education, and early detection efforts
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Contribute to life-changing outcomes for children and families
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Most importantly, your partnership helps turn awareness into action—creating real, lasting impact for those affected by biliary atresia.
Event Schedule
Morning: Arrival & Registration
6:45 – 7:45 AM — Registration & Check-In
Player check-in, distribute swag bags & scorecards
Pre-event raffle ticket sales & extras during registration
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7:45 – 8:15 AM — Welcome & Announcements
Opening remarks (host/organizer)
Review tournament rules, contests (longest drive, closest to pin, etc.)
Sponsor recognition
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8:15 – 8:30 AM — Move to Assigned Holes
Players head to carts & designated starting holes
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8:30 AM — Shotgun Start
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1:30 – 2:00 PM — Tournament Wrap-Up
Final groups finish play
Scorecards turned in immediately​
Afternoon: Post-Play & Program
2:00 – 3:00 PM — Post-Tournament Social / Reception
Drinks, networking, and leaderboard updates
Silent auction opens
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3:00 – 4:00 PM — Awards Ceremony
Tournament winners announced
Contest winners recognized
Sponsor acknowledgments
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4:00 – 4:30 PM — Live Auction
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Auctioneer-led auction
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4:30 PM — Closing Remarks & Event Conclusion
Hotel Information
Room blocks with group rates are coming soon!
Tip: Some of our packages and sponsorships include a free night at the Omni - check it out!
Meet BA Warriors:
 TeddyI'm Teddy from Virginia! I was diagnosed with Biliary Atresia after the Kasai at 6 weeks. My first ever labs showed high direct bilirubin that worsened on a split bili ordered by my pediatricians 4 days later. I was evaluated for transplant at 2.5 months and listed at 5 months. My aunt was my living donor at 9 months. Though I've had PTLD and other bumps, I'm a fiercely independent & wild 4yo. Thanks for supporting me & the BA community! |  JonahI'm Jonah from Maryland. I was diagnosed with biliary atresia at two months old. My Kasai procedure failed three months later, leading to repeated hospitalizations for infections and failure to thrive. After being placed on the UNOS transplant list, I received a living donor liver from my mom at seven months. Five years later, my labs show I'm very generally healthy, aside from occasional EBV flare-ups and ongoing immunosuppressant care. Thanks for supporting me, & our rare BA community! |  HudsonI'm Hudson! I was diagnosed with Heterotaxy at 21 weeks & then with biliary atresia at 10 days old. The kasai procedure didn't help my liver regain function so I was lucky to get a piece of my Uncle's liver when I was 9 months old. I still struggle with not liking blood draws but after I got a portal vein stent placed 1 year post-transplant, I have been doing well! I am still trying to understand everything that is going on with my body but meeting other BA friends is my favorite! |  KinleeKinlee is a Tucson native and is still thriving with her native liver thanks to the kasai procedure. |
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 XanderXander is a BA warrior who just celebrated his 3rd liverversary. |  Aaron JacksonBA Patient & Liver/Kidney Recipient |