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Distance Learning

Webinars

BARE’s webinar series offers expert-led sessions covering the full spectrum of topics related to biliary atresia—from newborn screening and early diagnosis to treatment options, long-term care, and resources for families. Whether you're a newly diagnosed family, a seasoned caregiver, or a healthcare provider, our webinars are designed to educate, empower, and connect.

Accessible from anywhere in the country, these free virtual events bring vital information and support directly to your household, helping you stay informed and engaged every step of the way. Join us as we build a stronger, more knowledgeable community—together.

Unable to attend one of our webinars? We get it! Click the button below or scroll down to to our Webinar Library where users can login and watch previously recorded webinars. 

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BARE 2026 Monthly Webinar Series – “Fact & Feel”

Families impacted by BA frequently report unmet needs in:

  • Access to reliable, up-to-date medical information

  • Emotional and psychosocial support

  • Peer connection

  • Guidance in navigating complex healthcare pathways

  • Free, accessible educational resources

BARE's 2026 Webinar Series answers those unmet needs within the community. Digital webinars remove common barriers and offer a flexible, interactive format. 

This series is designed to meet community needs through consistent, digestible, and highly accessible content.

 

What To Expect In The 2026 Series:

24 webinars

12 “Fact” Webinars – clinical, educational, research, advocacy

12 “Feel” Webinars – emotional support, mental health, coping, lived experience

60–75 minutes each; includes live Q&A

Rebroadcast on-demand through BARE’s website

Free access with email sign-in

 

Scheduled as:

*Subject to change based on holidays & current events

 

Webinar Wednesday (Fact)

Sunday Session (Feel)

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See Below for Upcoming Webinar Registrations! 

Join Us Sunday, May 17 at 5pm Eastern/3pm Mountain 

Talking To Your Child About BA (1).png

Talking To Your Child About Biliary Atresia

Join us for an informative webinar featuring Molly McClure, MA, CCLS, Senior Certified Child Life Specialist at Hassenfeld Children's Hospital at NYU Langone.

In this session, Molly will share guidance on communicating a diagnosis to children in an age-appropriate and supportive way, helping caregivers navigate conversations with clarity, compassion, and confidence. She will also discuss strategies for supporting a child’s understanding of their diagnosis, managing emotional responses, and fostering trust and open communication within the caregiver-child relationship.

This webinar is designed for caregivers seeking practical tools and expert insight to strengthen communication and support their child throughout the diagnostic journey.

Join Us Wednesday, May 20 at 6pm Central/5pm Mountain 

Infection Prevention & Cholangitis

Join us for an educational webinar on Infection Prevention & Cholangitis for individuals and families affected by biliary atresia. Presented by Melissa Semp, APRN, Family Nurse Practitioner in Gastroenterology, Hepatology, and Nutrition, and Liver Transplant Coordinator at Ann & Robert H. Lurie Children's Hospital of Chicago, this session will provide practical guidance for patients and caregivers at every stage of the biliary atresia journey.

Participants will learn strategies to help prevent infection, recognize the signs and symptoms of cholangitis, and better understand how infections are evaluated and treated. The webinar is designed to empower families with knowledge and tools to support overall health, improve communication with care teams, and feel more prepared when complications arise.

Webinar Library
*Access requires email login

Connecting Through Storytelling- Recording
54:07
Beyond The Diagnosis: Lifelong Liver Health for BA Patients and Families
01:09:37
Call to Action Webinar 10-28-25
01:52:59

Thank You to BARE's 2026 Webinar Series Sponsors!

Click on the image to learn more about COTA (Children's Organ Transplant Association) 

Click on the image to learn more about Mirum Pharmaceuticals  

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