Caring for a child with biliary atresia and can be stressful not only emotionally but financially. The cost of continued medical care for someone with liver disease pre and post liver transplant can add up. Here are some tips that can be helpful:
Make an appointment to speak with your hospital's financial aid department for possible programs that could be available for your specific situation.
Connect with your hospital's social worker to learn about financial assistance programs available in your area.
Some hospitals will award grants or offer payment programs
Personal fundraising- some families have held bake sales, garage sales, or church fundraisers to help aid in medical costs
For Profit Fundraising Organization- money donated to a for profit is considered taxable income for the recipient and may have an impact on eligibility for services such as Medicaid. An example would be “Go Fund Me” www.gofundme.org
Non-Profit Fundraising Organization- 100% of each contribution made helps patients and families. Donations are tax deductible and do not count as income for the family/child. An example would be COTA (Children’s Organ Transplant Association).
There are many organizations out there dedicated to work with families to help lessen the financial burden. Learn more about one of BARE’s partners:
COTA- Children’s Organ Transplant Association
Children’s Organ Transplant Association (COTA) is the nation’s leading 501(c)3 nonprofit organization providing fundraising assistance and support to families across the country who are facing life-saving transplants. COTA’s unwavering commitment is, and has always been, to serve families for a lifetime. COTA’s services and guidance are provided at no charge. 100% of each contribution, which total more than $125 million in their history, made to COTA in honor of patients helps meet transplant-related expenses, and gifts to COTA are tax deductible to the fullest extent of the law. COTA offers a streamlined online submission process for families as well as electronic funds transfer for allocations. COTA funds can be used for transplant-related expenses that include lodging, transportation, living donor expenses, household expenses, prescription medications, insurance premiums and more.
If you would like to learn more, you can call 800.366.2682 or go to www.cota.org